Experts have no cure for CFS. But they recommend a new acronym: SEID. It stands for systemic exertion intolerance disease.
It would be a lot better if the experts acknowledged the cure. There is a cure.
It would be best if the Food and Drug Administration did not shut down anyone who is found offering this cure. This is what the FDA does. I speak from experience.
My wife had this debilitating disease in 1987 and 1988. It left only after the “black box” treatment. It took three days: 8 hours a day of being hooked up to a machine. The symptoms departed: chronic headaches, the inability to remember anything she read after two minutes, the sense of speeding when driving 15 miles an hour, the constant weariness. I have reported on her recovery several times. For my 2005 article, click here. (The same treatment also cured James Coburn’s arthritis.)
It is is course an illegal treatment. The Feds shut it down in 1991. You have to know where to go to get treated today. Few people know.
I wish Laura Hillenbrand knew. It is within driving distance. She is the author of Louis Zamperini’s biography. She never leaves her home. She was never well enough to meet Zamperini. This is a truly debilitating disease. I am amazed that she can write at all. My wife could not have done this. It affected her memory.
She visited several physicians when she had CFS. None of them took her seriously. None of them had any useful suggestions. Had I not been tipped off to the machine by a man whose wife had been cured of an unrelated disease, endometriosis, my wife might still be a victim. His wife persuaded her to try it.
The federal government’s bureaucracy shut down the clinic in 1991. This is always a threat. Anything that is not cut, drug, or burn is suspect at the FDA. This was an unconventional treatment.
What sufferers from CFS need most is not a new name for their affliction. What they need is the de-funding of the Food and Drug Administration. But this is unlikely.